Starting with PROCYSBI®
(cysteamine bitartrate) delayed-release capsules

  • Resources
    for Patients

Doctor Discussion Guide

Use this convenient guide to help you discuss your questions about nephropathic cystinosis and PROCYSBI at your next doctor's appointment.

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Prescription Enrollment Form (PEF)

Bring this form to your doctor to initiate the prescription process.

Download in English

Descargar en Español


PROCYSBI plays an important role in the management of nephropathic cystinosis. When you or a loved one is prescribed PROCYSBI, RaptorCares® will provide the customized support you need to navigate the insurance process and make the most of your treatment.

Getting on PROCYSBI

Fill out the Prescription Enrollment Form (PEF)

Complete the sections that require your information. Save the "Clinical Information" section for your doctor to fill out.

Download the PEF now

Meet with your doctor

Talk with your doctor and ask if PROCYSBI is right for you. Your doctor will then complete your Prescription Enrollment Form (PEF) and submit it to RaptorCares to be processed.

Prevent Delays in Getting Your PROCYSBI

RaptorCares or Accredo Specialty Pharmacy may call you about your Prescription Enrollment Form. Please make sure you:

  • Call back RaptorCares or Accredo Specialty Pharmacy right away
  • Provide any additional information needed to help process your prescription


PROCYSBI is a delayed-release form of cysteamine bitartrate that works by continuously reducing the toxic levels of cystine in the cells. This may help prevent irreversible cellular damage. PROCYSBI can provide continuous control of cystine levels when taken every 12 hours.

PROCYSBI is a prescription medicine used to manage a medical condition called nephropathic cystinosis in adults and children 6 years of age and older.

It is not known if PROCYSBI is safe and effective in children under 6 years of age.

Do not take PROCYSBI if you are allergic to penicillamine.

Please see Full Prescribing Information and Patient Package Insert.

PROCYSBI support

By enrolling in RaptorCares, the PROCYSBI patient support program, you may receive customized support based on your personal situation. Case managers will be with you every step of the way, from enrolling in RaptorCares to processing your prescription and sending PROCYSBI to you.

Access Key


Prescription Services — By enrolling in RaptorCares, you will have access to dedicated and knowledgeable case managers. They specialize in helping you navigate the insurance process, advocate on your behalf, and determine your coverage of PROCYSBI.

Alternate Insurance Coverage — If your insurance doesn't cover PROCYSBI or you don't have insurance, RaptorCares Case Managers will attempt to find alternate insurance that will cover PROCYSBI.


If needed, RaptorCares Case Managers may help you find the appropriate financial support for your situation. For eligible patients, this can include:

Copay Assistance — This program helps you better manage out-of-pocket copay costs by paying for part of your copay.

Premium Assistance — Through a nonprofit foundation, partial or full monthly insurance premiums may be subsidized. Individuals must apply and qualify for this financial assistance.

Travel Assistance — Travel cost assistance may also be available through a nonprofit foundation. Individuals must apply and qualify for this financial assistance.

Patient Assistance — Offered to patients who do not have insurance coverage and may not otherwise be able to afford PROCYSBI. Eligible patients will receive PROCYSBI at no charge until prescription drug coverage is obtained.


RaptorCares partners with a specialty pharmacy service to make it easy for you to fill your prescription for PROCYSBI. Prescriptions can be ordered and refilled over the phone and will be sent directly to your home or location of convenience.

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G-Tube Administration Video

Order your complimentary G-Tube administration video on a USB flash drive here: (U.S. Healthcare Professionals Only)

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