Starting With PROCYSBI

The first cystine-depleting medication dosed every 12 hours

PROCYSBI is a delayed-release form of cysteamine bitartrate that works by continuously reducing the toxic concentrations of cystine in the cells. This may help prevent irreversible cellular damage. PROCYSBI can provide continuous control of cystine when taken every 12 hours. PROCYSBI plays an important role in the treatment of nephropathic cystinosis. When you or a loved one is prescribed PROCYSBI, RaptorCares will provide the customized support you need to navigate the insurance process and make the most of your treatment.


The most common adverse reactions (≥5%) in patients treated in clinical trials are vomiting, nausea, abdominal pain, breath odor, diarrhea, skin odor, fatigue, rash, and headache.

Getting on PROCYSBI

Fill out the Prescription Enrollment Form (PEF)

Complete the sections that require your information. Save the "Clinical Information" section for your doctor to fill out.

Download the PEF now

Meet with your doctor

Talk with your doctor and ask if PROCYSBI is right for you. Your doctor will then complete your Prescription Enrollment Form (PEF) and submit it to RaptorCares to be processed.

Prevent Delays in Getting Your PROCYSBI

RaptorCares or Accredo Specialty Pharmacy may call you about your Prescription Enrollment Form. Please make sure you:

  • Call back RaptorCares or Accredo Specialty Pharmacy right away
  • Provide any additional information needed to help process your prescription

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Healthcare Professional?

G-Tube Administration Video

Order your complimentary G-Tube administration video on a USB flash drive here: (U.S. Healthcare Professionals Only)

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